IBC patient succumbs to illness as research moves forward
By Michelle Esteban & KOMO Staff
ROCHESTER, Wash. -- A young mother has died after a year-long struggle with inflammatory breast cancer.
KOMO News first brought you the story of Lori Davider's story in February. Even though Lori was in the fight of her life, she wanted to warn other women. She died last week. "I'm not ready to die from this," Davider told me a year ago. Just in her mid 40s with her new husband at her side and her son and daughter depending on her, Davider got the shock of her life. And she didn't learn about it from her doctor; she got the news from our KOMO News reports on inflammatory breast cancer, or IBC. "I went home that night and looked at the KOMO Web site and it was like bing, bing, bing! I looked at the pictures and said 'this is me,'" said Davider last December. Her breast had swelled up overnight, the nipple had caved in and her breast was dimpled like an orange peel. It was also hot to the touch and red -- all IBC symptoms. In my report, I explained how countless women were misdiagnosed and by the time they got the right diagnosis the cancer had often already reached stage 4. There is no stage 5 in IBC. Davider told her doctor she was certain she had IBC. He disagreed. She had to find another doctor to believe her. It turned out she was right; she had stage 4 IBC. Second to fighting IBC, Davider wanted to warn others. "Don't take no for an answer, it's your body," she said. To help tell her story, she let us tag along for the countless radiation treatment that drained her so badly and the chemotherapy that made her constantly sick. She desperately wanted other women to see her story so they would know what she didn't. Davider's cancer eventually spread to her brain. Repeated surgeries could not stop the cancer from spreading. She prayed that every doctor would get a refresher course on IBC so patients would have a better chance of getting the correct diagnosis. Her passion is Dr. Massimo Cristofanilla's passion. "Teach it, treat it, beat it," said Cristofanilla, breast medical oncologist and director of the IBC Clinic and Research Program at MD Anderson Cancer Center in Houston, Texas. Two weeks before Davider died, I called her family to say she got her wish. For the first time doctors, researchers and investigators from all over the world were meeting at MD Anderson to learn more about IBC. The meeting was a part of a continuing medical education symposium and an opportunity to form the first IBC consortium in the world. Doctors from Serbia, Africa, Italy, Australia, and all across the United States agreed to work together and to share their findings. Together, they hope to improve IBC diagnosis and treatment. "I think we'll find a cure, too, but the way to do it is globally. We're so behind on even the basic research on IBC," said Cristofanilla. I was invited to speak at the IBC conference. I thanked them for answering Davider's prayer. Because of Davider, so many others, including doctors, now recognize the symptoms of IBC and know it's the most deadly form of breast cancer. For information about IBC support, visit eraseibc.com. |
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